Achondroplasia and Therapy: Experiences, Results, and What Comes Next?
On Friday, March 14, 2025, a significant event took place at Belgrade’s Media Center — the second national roundtable on achondroplasia , a rare condition that affects bone growth and causes short stature. The event, organized by the Association “Children with Achondroplasia of Serbia,” brought together experts, parents, doctors, and government representatives to discuss what is working, what has been learned, and what is next for children undergoing therapy in Serbia. What Is Achondroplasia? Achondroplasia is a rare genetic condition that affects the growth of bones, particularly in the arms and legs. Children with achondroplasia are shorter than other children their age, and they may face health challenges like back pain, breathing problems, or difficulty moving. But there is now a therapy that can help — and that’s what this meeting was all about. A Look Back — and a Big Step Forward The first patients in Serbia started treatment in March 2023 . Two years later, eight children a...